ALS

My Voice gives individuals with ALS their voice back

2017.05.10

“Losing one’s voice forever is traumatic. The other day, my 11-year-old daughter asked me if the metallic voice of the PC was my real voice. After which, I was overcome with sadness”. This is ...

A book about ALS written batting eyelids 150,000 times

2017.02.20

'Abécédaire d’un Charcot' (alphabet of a Charcot) is the extraordinary book written by Damien Perrier. French physicist, 42 years old, and since 2009, bed-ridden with ALS, also known as illness of Charcot. "Everyday, I receive ...

Two paralyzed control a computer with thought

2015.09.30

Two paralyzed people with amyotrophic lateral sclerosis (ALS), were able to move a cursor on a computer screen with the power of thought. The extraordinary result was possible thanks to electrodes implanted in their ...

How many people with ALS in Italy?

2015.09.18

Amyotrophic Lateral Sclerosis (ALS), in Italy, has about 5,000 patients, generally ranging between 50 and 70 years of age. This is a progressive neurodegenerative disease that affects nerve cells in the brain and the ...

At the beach even with ALS

2015.04.07

A new project conceived by Gaetano Fuso, a 38 year old Italian man from Salento (Puglia) living with ALS from about one year. Its goal is to build a terrace on the coast of ...